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Rare diseases week 2019


Here you can find information on the events organized by Coordinating Centre for Children’s Rare Diseases during this year’s rare diseases week (in Lithuanian):   More information about the events (in Lithuanian):   DiGeorge syndrome family school (2019-02-25)   Cystic fibrosis family afternoon (2019-02-26)   Tuberous sclerosis experts mee…



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IXth international scientific – practical conference “Innovations in the treatment of rare diseases”


Dear colleagues, We kindly invite you to the conference “Innovations in the treatment of rare diseases” which will take place on March 16th in Crowne Plaza Vilnius (M. K. Čiurlionio 84, Vilnius) Conference is dedicated to cardiologists, hematologists, gastroenterologists, pulmonologists, rheumatologists, endocrinologists, nephrologists, neurologists, op…



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VIIIth Scientific practical conference “Coordinating Centre for Children’s Rare Diseases – experience and achievements in 5 years”


On March 1st, 2018, we are organizing a conference “Coordinating Centre for Children’s Rare Diseases – experience and achievements in 5 years”   For our team, 2018 is a very special year. It is the fifth year of active work with rare diseases. To commemorate that, we would like to invite you to the conference “Coordinating Centre [&hell…



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7th Annual Conference Research Brings Hope to People Living with Rare Disease


  7th Annual Conference Research Brings Hope to People Living with Rare Disease is dedicated to Rare Disease Day Date: March 17, 2017  Venue: Crowne Plaza Vilnius, M.K.Čiurlionio str. 84, Vilnius, Lithuania Accreditation: 8 hours Certificate is valid for children and adult doctors of all specialties, pharmacists and nurses. Conference Organizing Committee: Ass…



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MPS II (Hunter Syndrome) from Diagnosis to Treatment


On October 20, 2017 an international scientific seminar MPS II (Hunter Syndrome) from Diagnosis to Treatment is organized Venue: Holiday Inn Vilnius (Šeimyniškių g. 1, Vilnius) Date: October 20, 2017. 9:30  – 17:00 Audience: Physicians of all specialties The objectives of the seminar: To increase awareness of MPSII symptoms and signs, diagnosis and treatment …



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Rare Cardiomyopathies in Children and Adults


Rare Cardiomyopathies in Children and Adults 6th International Scientific Conference   2016 m. spalio 20 d. (October 20, 2016) Holliday Inn Hotel, Šeimyniškių g. 1, Vilnius   Registracija (Registration): www.rarediseases.lt   8:30 – 9:30 Registration I session LithuanianChairmen: prof. A. Laucevičius, prof. A. Utkus 9:30 – 9:40 Opening sp…



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Maloniai kviečiame Jus pareikšti savo valią ir 2 proc. valstybei sumokėtų mokesčių skirti Retų ligų labdaros ir paramos fondui

Fondo rekvizitai: Retų ligų labdaros ir paramos fondas

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