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Rare diseases week 2019

Here you can find information on the events organized by Coordinating Centre for Children’s Rare Diseases during this year’s rare diseases week (in Lithuanian):

 

More information about the events (in Lithuanian):

 

DiGeorge syndrome family school (2019-02-25)

 

Cystic fibrosis family afternoon (2019-02-26)

 

Tuberous sclerosis experts meeting (2019-03-05)

 

Esophageal atresia: lectures for the family (2019-03-06)

  • Archive
  • Rare diseases week 2019
  • IXth international scientific – practical conference “Innovations in the treatment of rare diseases”
  • VIIIth Scientific practical conference “Coordinating Centre for Children’s Rare Diseases – experience and achievements in 5 years”
  • 7th Annual Conference Research Brings Hope to People Living with Rare Disease
  • MPS II (Hunter Syndrome) from Diagnosis to Treatment
  • Rare Cardiomyopathies in Children and Adults

Maloniai kviečiame Jus pareikšti savo valią ir 2 proc. valstybei sumokėtų mokesčių skirti Retų ligų labdaros ir paramos fondui

Paremti
Fondo rekvizitai: Retų ligų labdaros ir paramos fondas

Company: Pašilaičių g. 4-37
Company code: 304177976
Address: Santariškių g. 4, Vilnius
retos.ligos@santa.lt
Phone +370 630 09 244
A/s Nr. LT 20 7300 0101 4585 6268
AB bankas "Swedbank"
Bank no. 73000
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