Patient Organizations
Pediatric Rare Diseases Association
President: Danas Čeilitka
Vivulskio st. 12D-18, LT-03221, Vilnius
https://www.facebook.com/retosligos
Lithuanian Spina Bifida and Hydrocephalus Association
Chairperson: Elena Slobodyanik
Bitėnų st. 9-8, LT-06228, Vilnius
Tel. +370 699 23060
E-mail: slobodianik@yahoo.com
National MPS and Other Genetic Metabolic Diseases Association
Chairperson: Ramunė Šliuožaitė
Klaipėdos st. 29-4, Gargždai, Klaipėda distr.
Tel. +370 698 80600
E-mail: ramune.sliuoza@gmail.com
Lithuanian Association „GYVASTIS”
President, member of the council: Ugnė Šakūnienė
Vytauto st. 3–5, LT-08118, Vilnius
Tel. +370 684 48979
E-mail: gyvastis@donoras.lt